For a long time, I have believed we are soul journeyers having a human experience. The beauty and challenge of life is that our assumptions and beliefs get tested along the way. In 2012, for me, one way has been through my mother’s journey.
Painting by Adimir Kush
When the symptoms of my mother’s dementia were becoming more obvious in the years before she went into long term care, I knew it as a soul journey and experienced it as a human tragedy story. This became more pronounced when she went into long term care. Instead of being the only person in a household living out a bizarre new set of behaviours, losing her capacity to communicate and do simple things like change the channel on the TV, she became one of many old and dying people no longer able to care for themselves, most living in their own little diminishing physical worlds.
The human tragedy story is amplified in these circumstances and places. It is hard to see past the story of tragedy when it stares you in the face as you walk down hallways that evoke very visceral reactions in what you see, smell, hear or otherwise encounter – even in a place as loving and caring as the place my mother experienced as home in the last four years of her life.
How many people came up to me, my brother or my father after mom’s funeral to share amazing stories about her that captured the essence of who she was and then proceeded to talk about how they just couldn’t visit her at Harbourview Haven. How hard it was if she didn’t seem to recognize them. How hard it is to be in that building when, as a culture, we have become disconnected from the death chapter of the life cycle. We no longer experience it as part of the natural flow of life but as something to be feared. Walking in a place where death is imminent generates fear and discomfort for many of us. It did for me when I first began visiting my mother but, through my mother, the shape of my experience shifted.
For the few who were able to manage a visit or two, they expressed how amazing it was when there was a flicker of recognition in something she said. I learned how many people besides me she called “little one” (really mom?!) and that was a point of reference for them.
There are others who saw enough through the human tragedy story to visit often. My mother had a few of those regular visitors although we often didn’t even know it since she couldn’t remember who visited or when they did. Deeply grateful for those dear friends.
The length of mom’s journey with dementia and her stay in long term care, invited me more deeply into this paradox of understanding the human tragedy dressing of soul journey. The phrase “oh, that poor soul” makes me chuckle now. We use that phrase to describe the human tragedy perspective. It is the physical experience that appears poor, not the soul journey perspective if you believe, like I do, that we make some choices before we manifest into physical form about what it is we want to experience for our soul journey this time around.
As my mother become more disembodied, I embodied the soul journey perspective from a deeper, more encompassing place of understanding. Towards the end, her human tragedy story didn’t register for me anymore, only the soul journey perspective. This gave me a high degree of peace during her long transition process, allowing me to live my life fully even while being present to my mother’s journey and our family care around it.
For the gifted people who work at Harbour View Haven, it seems to me they also see past the human tragedy perspective, treating each individual with full dignity and respect. Treating them as if they are, what we consider, fully functioning, fully present human beings. It was a gift to observe this most keenly in my mother’s final hours. It made me wonder what would happen if we all treated others all the time with this kind of dignity and respect – whether we thought they deserved it, whether we thought they were fully human or not.
Living simultaneously with my mother’s journey, my journey and the rest of life, I’ve been thinking about how to express this all so it does not fuel the human tragedy story. I now speak about “the many streams of life”. We are all in many streams of life all at the same time. Stuff happens. Stuff comes up. There is a life giving invitation to be well in all of it, although a more typical response is to be stressed by all the things that come our way that we have to take care.
I’m leaning into this invitation to flow with the many streams of life as though that is what they are, rather than challenges. Greater spaciousness beautifully shows up.
And then there are the lessons of embodiment that have been present for me in a big way already in and since 2012. As I embody my experiences and my learning I understand more deeply my life’s events, my relationships and my soul’s calling.
I’m not saying the human tragedy story isn’t real. But the soul journey perspective is also just as real although harder for many to see, obscured by the human tragedy story. The soul journey perspective allows me to live into joy and delight and allows me to fall in loveover and over again in a way living into the human tragedy story does not.
For my mother, I continue to experience a dance of joy, delight and lightness as her spirit soars free from the human tragedy unfolding of her physical body. She continues to be my teacher and my friend and very, very real in my human experience.
(Originally published at Shape Shift Strategies Inc. on March 1, 2012)